This is a follow up post to the one John made entitled 'Unhappy With Your HIV Services'
South London (with the partial exception of Bromley) has a unique arrangement whereby all of the PCT's (Primary Care Trusts) and local authorities (Council's) have got together to fund and make provision for a range of HIV services....you can find out what they are funding and who is providing those services for them by going to the 'South London HIV Partnership' website at http://slhp.nam.org.uk/cms1256039.aspx the site also gives details of how to access those services.
If you have any issues with the service you receive from any of the organisations providing services to you for the SLHP and you do not wish.... for any reason... to bring them to the attention of the organisation concerned or to the SLHP directly you can do so via 'Feedback South London' which is service user body.... details of which are available on its web site at http://www.feedbacksl.org.uk/
Friday 4 April 2008
House of Lords Debate on HIV/AIDS April, 3rd 2008
You may be interested in the content of this debate. Held in the House of Lords on 3rd April 2008. Click here for the debate.
As indicated in the debate. Lord Fowler is a trustee of the Terrence Higgins Trust & sits on the All-Party Parliamentary Group on AIDS.
I've had some correspondence with the All Party Group but await feedback on our issues.
Today, I wrote to several members of the House of Lords that took part in this debate.
As indicated in the debate. Lord Fowler is a trustee of the Terrence Higgins Trust & sits on the All-Party Parliamentary Group on AIDS.
I've had some correspondence with the All Party Group but await feedback on our issues.
Today, I wrote to several members of the House of Lords that took part in this debate.
Early Day Motion 637 on Disabled Poverty
I found this today. It is an Early Day Motion, number 637. You can find it by clicking here to see if your MP has signed it. If not, please write to them.
"EDM 637
DISABILITY POVERTY IN THE UK
07.01.2008
That this House notes that the Leonard Cheshire Disability report Disability Poverty in the UK finds that disabled people are twice as likely as non-disabled people to live in poverty; further notes that disabled people can experience poverty in a number of ways including financial poverty, poverty of aspiration and poverty of opportunity; further notes that average basic living costs are much higher for disabled people; further notes that disabled people are twice as likely to be unemployed and seeking work than non-disabled people and that disabled people who are not expected to work are often trapped in inescapable poverty; believes that the extent of disability poverty in the UK today is unacceptable; and calls on the Government to make tackling disability poverty a priority."
"EDM 637
DISABILITY POVERTY IN THE UK
07.01.2008
That this House notes that the Leonard Cheshire Disability report Disability Poverty in the UK finds that disabled people are twice as likely as non-disabled people to live in poverty; further notes that disabled people can experience poverty in a number of ways including financial poverty, poverty of aspiration and poverty of opportunity; further notes that average basic living costs are much higher for disabled people; further notes that disabled people are twice as likely to be unemployed and seeking work than non-disabled people and that disabled people who are not expected to work are often trapped in inescapable poverty; believes that the extent of disability poverty in the UK today is unacceptable; and calls on the Government to make tackling disability poverty a priority."
Tcell group.
Another successful meeting this week.
We are keen to find out what your thoughts are on what we do here. So please drop me an email or comment accordingly. Thanks. If you would like to get more involved also, please email me.
We are keen to find out what your thoughts are on what we do here. So please drop me an email or comment accordingly. Thanks. If you would like to get more involved also, please email me.
Some events & info you may find useful
Picked up by a member of Tcell from the Tfl Disability Magazine "Getting There".
From the 29th April to 1st May 2008 - Naidex Independent Living exhibition at the NEC Birmingham.
Also there is an Advocacy group you may find useful. Called the Advocacy Resource Exchange they can be telephoned on 08451 22 86 33 between 2pm & 5pm, Monday to Friday.
From the 29th April to 1st May 2008 - Naidex Independent Living exhibition at the NEC Birmingham.
Also there is an Advocacy group you may find useful. Called the Advocacy Resource Exchange they can be telephoned on 08451 22 86 33 between 2pm & 5pm, Monday to Friday.
Wednesday 2 April 2008
DLA556 came in post this morning
Well I was waiting for it as my partner had his. My DLA556 form came this morning. I have scanned this in and added it to the documents available, just follow the "Useful Documents" link on the main web site.
I make this available for information purposes.
Not everyone will be asked to fill in a DLA556. You may get a decision upon assessment of your DBD551 & medical report. You may be asked by letter to provide a little more information. Before a decision is made. Everyone's situation is dealt with differently and is unique to the individual. If you receive a DLA556 you have 4 weeks to complete it. You can call the DWP to ask for more time.
If you get any correspondence from the Department for Work & Pensions. DO NOT IGNORE it. Doing so may affect your benefit.
I make this available for information purposes.
Not everyone will be asked to fill in a DLA556. You may get a decision upon assessment of your DBD551 & medical report. You may be asked by letter to provide a little more information. Before a decision is made. Everyone's situation is dealt with differently and is unique to the individual. If you receive a DLA556 you have 4 weeks to complete it. You can call the DWP to ask for more time.
If you get any correspondence from the Department for Work & Pensions. DO NOT IGNORE it. Doing so may affect your benefit.
i-base funding withdrawn.
Posted FYI - http://www.i-base.org.uk
"STOP PRESS: i-Base funding withdrawn: urgent request for letters of support
As this issue of HTB went to press we learned that the London Health Commissioners have withdrawn funding for all i-Base projects.
For the last two years we have received £50k (just under 20% of our annual budget) towards the treatment phoneline and information services, adherence support publications (the BHIVA-recommended treatment passport) and treatment workshops.
Public funding stabilised the project sufficiently to continue to provide HIV Treatment Bulletin and the five i-Base treatment guides free to all individuals and clinics, and to run additional treatment workshops with community groups.
In retendering for services the London Commissioners declined to tender for any existing project and refuses to contribute towards the costs of any i-Base services...
No publications, no treatment workshops, no advocacy training, no phoneline support, no email services, no online Q&A services, no translations of treatment publications, no website.
We think this is unfair and is not reflective of the needs of London patients and clinics.
If you use or have used i-Base services as a London patient or clinic, please email letters of support to:
ray.appleby@kc-pct.nhs.uk
hong.tan@londonscg.nhs.uk
It would help us if you could copy any correspondence to:
simon.collins@i-Base.org.uk
i-Base employs three full-time and four part-time staff for all our projects. Five of the seven staff are HIV-positive. The funding decision, for which we are told there is no appeal, threatens these posts and the services we provide.
Thank you for your support..."
"STOP PRESS: i-Base funding withdrawn: urgent request for letters of support
As this issue of HTB went to press we learned that the London Health Commissioners have withdrawn funding for all i-Base projects.
For the last two years we have received £50k (just under 20% of our annual budget) towards the treatment phoneline and information services, adherence support publications (the BHIVA-recommended treatment passport) and treatment workshops.
Public funding stabilised the project sufficiently to continue to provide HIV Treatment Bulletin and the five i-Base treatment guides free to all individuals and clinics, and to run additional treatment workshops with community groups.
In retendering for services the London Commissioners declined to tender for any existing project and refuses to contribute towards the costs of any i-Base services...
No publications, no treatment workshops, no advocacy training, no phoneline support, no email services, no online Q&A services, no translations of treatment publications, no website.
- The i-Base phoneline has been provided expert peer-advocacy support for over five years, and have the cumulative experience from having spoken to thousands of individual patients.
- Over the last two years the UK-CAB has developed into a representative network of advocates and peer advocates.
- We have distributed thousands of treatment guides - ordered by request from clinics.
We think this is unfair and is not reflective of the needs of London patients and clinics.
If you use or have used i-Base services as a London patient or clinic, please email letters of support to:
ray.appleby@kc-pct.nhs.uk
hong.tan@londonscg.nhs.uk
It would help us if you could copy any correspondence to:
simon.collins@i-Base.org.uk
i-Base employs three full-time and four part-time staff for all our projects. Five of the seven staff are HIV-positive. The funding decision, for which we are told there is no appeal, threatens these posts and the services we provide.
Thank you for your support..."
Tuesday 1 April 2008
Positive Nation March Issue
The March edition of Positive Nation is out and available on line by clicking here.
This edition has an article on the Disability Living Allowance review.
If you subscribe to this magazine it should be with you in the post or in clinic, shortly.
We would like to thank the team at Positive Nation for covering the DLA in this issue.
This edition has an article on the Disability Living Allowance review.
If you subscribe to this magazine it should be with you in the post or in clinic, shortly.
We would like to thank the team at Positive Nation for covering the DLA in this issue.
Some good news.
Please click here to read some good news on a previous posting.
You will need to access the comments to see the result the lady has received following here review.
You will need to access the comments to see the result the lady has received following here review.
Unhappy with your local HIV Services.
Your local Primary Care Trust (PCT) and/or local Council commission local services for HIV. For example you may have a local charity that provides counselling or welfare advice for people with HIV.
You are a service user. Your views shape how these services are delivered.
You can submit compliments or complaints to your local PCT/Council giving your views on the services available in your area.
You can find your local PCT by clicking here. Enter your post code and select NHS Trusts from the drop down menu.
Any letter should be addressed to the "Commissioner for HIV Services".
You are a service user. Your views shape how these services are delivered.
You can submit compliments or complaints to your local PCT/Council giving your views on the services available in your area.
You can find your local PCT by clicking here. Enter your post code and select NHS Trusts from the drop down menu.
Any letter should be addressed to the "Commissioner for HIV Services".
Monday 31 March 2008
EAS Rates
You maybe interested in this forum post from the Benefits & Work website concerning the rates of EAS when it comes in October 2008.
Click here.
Also you can see the Written Ministerial Statement from Stephen Timms MP, Minister of State (Employment & Welfare Reform) Department for Work & Pensions by clicking here.
Click here.
Also you can see the Written Ministerial Statement from Stephen Timms MP, Minister of State (Employment & Welfare Reform) Department for Work & Pensions by clicking here.
Over the weekend I heard ....
Over the weekend I heard of another successful decision. Though this did go all the way through to the person having to complete a DLA556.
Whereas it is still difficult to gauge the fuller picture with so many still in the process. I would like to think that the work done by the team here & those in the background is making a positive difference.
Please let us know how you are getting on. It helps to build the bigger picture.
Remember everyones case is different. A decision that on person gets depends on their personal situation and may not necessarily apply in your case.
Whereas it is still difficult to gauge the fuller picture with so many still in the process. I would like to think that the work done by the team here & those in the background is making a positive difference.
Please let us know how you are getting on. It helps to build the bigger picture.
Remember everyones case is different. A decision that on person gets depends on their personal situation and may not necessarily apply in your case.
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