My response.

Thanks for taking the time to post.

Yes I agree with the core point you raise. Namely that all benefits should be reviewed periodically. It is not only HIV recipients who are being targeted here its all claimants of various disabilities. However the effects of HIV are person specific given it's genetic makeup. The issues so far as I can establish, as well as the auspices and manner under which this process is taking place, are :

1) The decision makers apply a standard model when making that decision. Not taking in to consideration person specifics.
2) Many have recieved this benefit for many years. There illness & the fact they are out of work place for many years. Means they would be regarded as unemployable. Unable to make up the shortfall in any loss of income.
3) Many of those suffer the effects of living with HIV for many years, medications etc. Therefore HIV is not the only chronic condition suffered.
4) Death may not be as immediate as it once was but the level of disability suffered on a daily basis can be severe.
5) Many are worried and very anxious about the lack of information available. I was frustrated.
6) Those who suffer with HIV are amongst the most stigmatised groups in society. Funding for other organsiations is being cut reducing the charitable routes that could help given the withdrawal of this benefit.
7) Several million claim "Incapacity Benefit". This review affects less than 50,000 or all disabilities. A few thousand of whom have HIV.
9) Many of the people you know who seem healthy that you know. May be so only because the extra income allows them to feed themselves properly, keep there homes warm. Also should they become ill it helps with the incidental costs that could be assoicated with it.
10) Many will have been symptomatic at the time of initial application. Suffering from AIDS. Damage will have been done to the immune system. If the prognosis changes in the short term. The last thing anyone suffering will want to do. Is tackle the state over a further review of their entitlement.
11) Not all medics you state on your form will be approached for a medical opinion.
12) The DWP medics may not be specialist in the field of HIV.

This is just off the top of my head.

If you have not claimed Disability Living Allowance and feel you might be entitled you should submit an application. You can do so here "DLA Application & details"

NOTE: Always ask for a re-review of your decision if you feel it was unfair. If the re-review agrees the initial decision then ask for an appeal. See the Guidance -Read this on the main web for info. Many applicants are only accepted on appeal. It seems to almost be a policy to always deny a new application.