I have written to the Minister for Disabled People, Secretary of State DWP & the Chairman of the Work & Pensions Select Committee.
"If only to dot the i's and cross the t's"
Be interesting if I
a) get a reply
b) content of reply.
Will post to web complete correspondence in due course.
The main website can be found at
- www.hivbenefits.co.uk
- TCell group website - under construction
- Positive Nation - March Issue online now!
- John's Background & Personal thoughts.
- Forum on Benefits & Work Website.
- "If you think our decision is wrong" - Form GL24 from the DWP. The appeal process for benefit decisions explained.
- Tribunals Service - Social Security Commissioners
- Tcell on myspace.com
- Disability Poverty in the UK - Report from Leonard Cheshire Disability
I have had a decison on my DLA and.. (select all that apply)
Which user are you?
Where do you live ?
Blog Archive
-
▼
2008
(184)
- ► 05/04 - 05/11 (4)
- ► 04/27 - 05/04 (8)
- ► 04/20 - 04/27 (8)
- ► 04/13 - 04/20 (13)
- ► 04/06 - 04/13 (7)
- ► 03/30 - 04/06 (12)
- ► 03/23 - 03/30 (6)
- ► 03/16 - 03/23 (11)
- ► 03/09 - 03/16 (10)
- ► 03/02 - 03/09 (22)
- ► 02/24 - 03/02 (22)
- ► 02/17 - 02/24 (14)
-
▼
02/10 - 02/17
(16)
- Written to
- Website.
- Positive East.
- From email.
- Problems posting comments to blog.
- New Website Front end.
- Positive Nation Magazine.
- Dates for your diaries .....
- A shared experience - Thank you.
- Progress on my claim.
- Motability.
- I called the campaign office for Mr. Brian Paddick
- A comment from a previous post.
- A shared experience - Thank you.
- Thanks to QX Magazine.
- Incapacity Benefit review.
- ► 02/03 - 02/10 (2)
- ► 01/27 - 02/03 (15)
- ► 01/20 - 01/27 (2)
- ► 01/13 - 01/20 (12)
Abbreviations.
- AIDS : Acquired Immune Deficiency Syndrome
- BIP : Benefit Integrity Project
- DCS : Disability Carers Service part of DWP.
- DLA : Disability Living Allowance
- DWP : Department for Work & Pensions
- GMFA : Gay Men Fighting Aids
- Govt. : Government
- HIV : Human Immunodeficiency Virus
- MP : Member of Parliament
- NAM : National Aids Manual
- THT : Terrence Higgins Trust
- UK : United Kingdom
- WPF - Wharfside Patients Forum
Links & other resources.
- 10 Downing Street Petition on the Review
- BBC Ouch!
- Benefits & Work - Independent Website {Subscription}
- Body & Soul is a unique UK charity supporting children, teenagers and families living with or closely affected by HIV.
- Citizens Advice Bureau
- Community Legal Advice - free
- Crusaid Hardship Fund.
- DASL - Disability advice service Lambeth
- Disability Alliance - Adjudication case law digest
- Disability Alliance - Latest posted decisions.
- Disability Alliance - New DLA/AA rules
- Disability Alliance attendance allowance and disability living allowance case law digest
- Disability Living Allowance Advisory Board
- Disability UK Govt. Website
- DLA Help Group
- DWP - HIV/AIDS medical information
- DWP DCS Advisory Group Members
- DWP Special Rules Exercise
- Gay Men Fighting AIDS {GMFA} Benefits page
- GHT - Wise advice on HIV & Welfare benefits from George House Trust
- Here you can find your MP
- i-base website
- If you are co-infected HCV (Hepatitis C) HCVoice may be helpful.
- Jobcentre Plus website
- KVN Forum for Patients of Kobler, Victoria Clinics & Nkosi Johnson unit.
- Motability Car Scheme
- NAM Benefits page
- Positive Nation Magazine
- Positively Women website
- Positve East - East London HIV Support (non THT)
- RADAR - Royal Association for Disability & Rehabilitation
- River House Trust - Hammermith & Fulham support for HIV
- RNIB -They are only able to give INDIVIDUAL advice to people with SERIOUS SIGHT LOSS - You may find "Challenging a decision about DLA and Attendance Allowance" interesting.
- Social activism, self-advocacy, and coping with HIV illness by D.E. Brashers et al - University of Illinois - from www.posh-uk.org.uk
- Some good General Benefit info
- The Eddie Surnam Trust
- The London GAY HIV Meetup group - DLA forum
- The Shaw Trust - Jobcentre Plus Accredited
- THT DLA Review information - updated 200308
- Welfare Reform Act 2007 Chapter 5
- Wharfside Patients Forum - St Mary's Hosptal Paddington.
- Youable Forum on Review.
John.
So you can put a face to this blog.
4 comments:
A quote from a London HIV clinic doctor last nite: 'I would bank on losing it I think everyone will. No one is doing the forms at the moment as a protest.' I'm not sure whether he means the claimants or the medics not filling in the forms.
Has anyone NOT filled in the forms that you know of & surely this would only make it worse for the clamiants as they will be visited by a DLA medic, am I right?
What next STOPPING medication?
A sort of 'hunger' strike........
I know from previous experience that I left part of my medication at home while a way, was told to stop for four weeks & then start them again. In that period my Viral load went from undetectable to a dizzy height. CD 4s not too bad. I can certainly see that some people will do drastic things at desperate times...
I haven't heard of anyone NOT filling in the forms. As not doing so would mean a ceasation of benefit. I would always advise you fill the forms in. Keep copies and APPEAL where necessary.
With respect to medication. I have tried not to overtly mention the situation you raise. Though I mentioned it in the letters I wrote to government ministers yesterday.
I would advise you continue to take your medication. As not doing so will put you rhealth at risk . With the knock on effect being felt by those close to you.
However, I have to be honest and many comments I have received so mention this course of action.
I guess if you get the timing right wih regard to stopping medication 'medication holiday'is the term I've heard. Stop meds & go have your bloods done, with any luck if your reports indicate a viral load above 200 copies then the DLA reviewer may have to reconcider a negative action.
Clutching a straws here.
I WOULD ADVISE YOU DO NOT STOP YOUR MEDICATION. IT MAY CREATE LONG TERM RESISTANCE ISSUES. IF YOU SO STOP DO SO UNDER ADVISE FROM YOUR CONSULTANT.
Post a Comment